Sharing Healthcare Data Workshop
October 17-18, 2024
The Watergate Hotel
2650 Virginia Ave NW, Washington D.C., DC, USA
Event Contact
Helen Wright
hwright@cra.org
Event Type
Event Category
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The Computing Research Association (CRA)’s industry committee (CRA-I) is pleased to host a 1.5-day workshop on Sharing Healthcare Data in Washington, DC on October 17 and 18th, 2024 that delves into crucial aspects of data ownership, access, and control, with dedicated sessions exploring the complexities introduced by data donation. This workshop is spun off the very successful CRA-I Sharing Healthcare Data Roundtable in December, 2023. Participants will be actively engaged in identifying innovative technologies to address trust issues and democratize data, emphasizing the necessity of effectively communicating these solutions to broader audiences. Another session envisions the transformative potential of having interoperable AI applications across the US health system. Attendees will discuss the ethical considerations surrounding sharing health data on social media, carefully weighing both positive and negative consequences. Regulatory requirements and compliance standards related to health data sharing through AI-based technologies, such as chatbots, are thoroughly examined, with a specific focus on Responsible AI and the implications of regulations like HIPAA. The workshop concludes by underscoring the importance of creating data literacy initiatives, akin to the National Coordinator for Health Information Technology (ONC)’s encouragement of a “nutrition label” for health AI, to empower communities in understanding the benefits of secure data sharing. We plan to release a summary report from this workshop and its participants to share broadly with the research community.
October 17, 2024 (Thursday)
07:30 AM | BREAKFAST |
08:30 AM | Welcome and Introductions |
08:45 AM | Keynote |
09:30 AM | Barriers to Sharing Healthcare Data |
11:00 AM | BREAK |
11:30 AM | InterAI: Connecting all health models/AI |
01:00 PM | LUNCH |
02:00 PM | Ethics in Health Data Sharing: Navigating Social Media Platforms |
03:30 PM | BREAK |
04:00 PM | Navigating Regulatory Landscape: AI Compliance |
05:30 PM | Day 1 Summary / Next Steps |
06:00 PM | DINNER |
October 18, 2024 (Friday)
08:00 AM | BREAKFAST |
09:00 AM | Report Writing |
10:30 AM | BREAK |
11:00 AM | Report Writing |
12:00 PM | Next Steps |
12:30 PM | LUNCH (To Go Box) |
01:00 PM | ADJOURN |
Shion Guha
Assistant Professor, Faculty of Information and Department of Computer Science
University of Toronto
Visiting Research Scientist
Parkview Research
Fayika Farhat Nova
Research Scientist
Parkview Health
Jessica Pater
Manager and Senior Research Scientist
Parkview Health
Divesh Srivastava
CRA-I Council Chair
Head of Database Research
AT&T
Tammy Toscos
CRA-I Council Member
Director and Senior Research Scientist
Parkview Health
Helen Wright
Manager
CRA-Industry
Computing Research Association
More details are forthcoming!